People love stories: An interview with Amit Sharma

A young woman wearing a blue singlet lying on a bed with an anxious expression on her face. Next to her is a young man also lying on his back. He is only wearing black shorts.

GENEVIEVE BARR AND ARTHUR HUGHES AS ALICE AND PHIL IN THE SOLID LIFE OF SUGAR WATER BY JACK THORNE CREDIT: PATRICK BALDWIN

 

Amit Sharma 2Credit-Matt Cetti-RobertsAmit Sharma has been the Associate Director of Graeae Theatre Company, London, since 2011. He recently directed The Solid Life of Sugar Water, a Graeae Theatre Company and Theatre Royal Plymouth production, gaining unanimous acclaim at the 2015 Edinburgh Festival Fringe, leading to a 2016 UK tour including a run at the National Theatre.

Amit is a graduate from Graeae’s Missing Piece actor training course. In 2012, he co-directed the outdoor spectacle Prometheus Awakes (with La Fura dels Baus/co-commissioned by GDIF and SIRF), marking the first large-scale outdoor production to be artistically led by Deaf and disabled people in the UK. Also for Graeae, he directed Ted Hughes’ The Iron Man, which toured both nationally and internationally and co-directed Graeae’s Rhinestone Rollers in Sequins and Snowballs with Jenny Sealey at the Southbank Centre. As Assistant Director, he has worked on Graeae’s productions of The Threepenny Opera, The Changeling and on The Four Fridas for Greenwich and Docklands International Festival 2015. Amit currently leads on Write to Play, Graeae’s flagship new-writing programme in partnership with venues across the UK.

 

GaeleSobott: Can we start by talking about the set design in The Solid Life of Sugar Water. The bed is central, upstage, vertical with the actors standing against it. From the audience perspective it is as if they are looking down on the characters lying on the bed.

Amit Sharma: The thing about Sugar Water and the aspect that I was really interested in was the relationship between the two characters, Alice and Phil, how much they were or weren’t communicating. The style, as it was written by Jack Thorne, consists of two monologues essentially inter-dispersed with both the characters’ dialogue. Well it is much more intricate and clever than how I’ve just described it to you, but the nature of them not talking to each other and addressing the audience set up something which is immediately striking, irrespective of the subject matter. There is some form of subtext that is going on between the two characters, which is very exciting. When we did our original set design it was very abstract, very sparse actually. Then we did a reading of it and the designer said to me, ‘I think we’ve got this wrong. I think the audience needs to be placed in the bedroom. The bed is missing.’

She was absolutely right. The bed was like the third element of the relationship within the text. So then we needed to decide how to be artistic about it. We didn’t want the bed to be literal. The piece isn’t naturalistic. We jump from the past to the present and then back again. So we developed the idea of looking down into the couple’s bedroom.

GS: What is that perspective? What does it give to the play?

AS: I really wanted the audience to feel that they couldn’t get away from being privy to and a part of the couple’s life. I don’t know about you, but when I visit a friend’s house the bedroom is always the last place I look. It would be a bit weird to go and look in their bedroom. That’s because it’s private and you’d feel as if you were prying into someone’s very personal space, even if they’re not in the room. I wanted the audience to feel like they were able to be in that space.

GS: How does this position the audience? Are they voyeurs or perhaps fly on the wall?

AS: I think more fly on the wall. I think voyeurism has an element of choice about it. Maybe fly on the wall does too. I just wanted the audience to really feel the pressure cooker of the couple’s relationship and be a part of that. Not able to separate themselves from it. That’s what the play does. You fall into it and by the end you’re feeling all kinds of emotions because of the performances but also because of Jack’s writing. The writing and the set. That’s why I wanted the audience to be together in the bedroom with the couple. I wanted them to be with them in their private moments without feeling they were intruding. At the end I wanted the audience to feel they have been through so much with this couple. It’s actually about healing both for the couple and also for the audience.

GS: The audience are looking down on the bed but they are also being spoken to directly by the characters. It is not possible for the audience to position themselves as just observers. They have to participate. What are your thoughts on this?

AS: That’s the good thing about theatre. You can set up a convention and then just totally break it. So whenever the characters were on the floor, that was like the wall of their bedroom but it became less about the bedroom, it was the post office, the bridge, even though the bed was always present. As a creative team we wanted it to be subtle, so yes the bed was always in the background because there was always that big question of them trying to have sex.

GS: There are many disabled artists and directors who feel there is a need to explore sex and disability, for various reasons including societal attitudes, the infantilisation of disabled people. What is the importance of sex in disabled art? What is the relation of this play to the exploration of sex and disability?

AS: The most interesting thing coming out of Sugar Water is that question has not been asked. It has not been unpacked. What the play does is almost normalise that very question of sex and disability. It is such a huge topic for so many different reasons. Perhaps it is because of the performers, one performer is Deaf and one performer has a physical impairment, but not to the extent where it impacts on their sex lives. What I mean by that is that if, say, one of the characters was a wheelchair user who had 24 hour personal care then that dynamic shifts. I was reading an article today about the Independent Living Fund and this guy saying how it can be difficult to live independently for example to go out and chat up girls because you’ve got someone else there all the time. So you have to negotiate that relationship. This play doesn’t go there. People have picked up on the element of communication between the couple, but the sex element not so. I also think it is because of how Jack as a writer was playing with the idea of sex. There’s a lot of comedy with some really graphic descriptions.

GS: Well yes there is comedy and there are very serious moments, a fine line.

AS: Yes, Jack Thorne gets that fine line absolutely right. In rehearsals we spoke about how graphic we should get or if we should get graphic at all. If we were brave enough to show our naked bodies and those kinds of discussions. It quickly became apparent that it wasn’t about that. It would have become alienating, as opposed to the audiences going: ‘Come on, we’re theatre audiences. We’re pretty smart. We can go whichever way you want us to go. We don’t have to see nudity to get what you’re talking about.’

It felt like we could just tell the story. The most interesting thing is the intricacy of communication between the audience and the performers. The couple think they are talking to each other and they’re not really, and they do the direct address where there is a conceit between each character and the audience. There are many different levels of communication.

A close up of a man's head, profile looking down with streams of water flowing over his head and face.

GS: Can you talk a little about the quality of the reviews the play has received?

AS: Well I think the journey of journalism and the way this show, and other shows at the Edinburgh Fringe by Deaf and disabled artists, have been reviewed has really shifted. It’s really come a long way. The art is now being reviewed as opposed to the performers and their physical shapes and sizes and what have you. It is really refreshing to see the work being reviewed in this way.

Talking about Sugar Water the reviews spoke about the subject matter as happening to two human beings not to two disabled people. In relation to Genevieve, being a Deaf performer, the discourse was quite intelligent as opposed to talking about a Deaf person blah blah blah, it was more sophisticated in both the reviewing and the conversation around it. That hasn’t always been the case.

GS: What comments did reviewers make in relation to Genevieve being a Deaf performer and character?

AS: The discussions were linked to the idea of communication. Naturally if your partner doesn’t sign then you have to rely on lip reading and you may not catch all the communication. Phil can’t sign so he is not able to get what he feels across all the time. The scene when he’s on the bridge and he tries to sign and gets it completely wrong really resonated and got the biggest laugh every time. By that point the audience realises Alice and Phil are not communicating on a number of levels. It was about them as individuals and what they felt for each other, what they wanted and needed from each other. Phil had never had a huge number of relationships before hand. Alice had just come out of a very difficult relationship. So that makes two very vulnerable people in a position where they are wondering if the relationship can work, can they get along. Can they get married and try to have a baby. Is their relationship driven by their love and passion for each other or by their insecurities? Sometimes the best art doesn’t answer the questions it poses. It poses the questions for the audience to consider.

GS: Do you think Alice and Phil’s relationship is resolved in the end?

AS: I don’t want to say. Some people are unsure whether they continue or they don’t and I intended for that to happen. In my head they do, yeah. But I didn’t want to answer that. I spoke to Jack about it. He really wanted a happy ending and I really didn’t want a happy ending. I said, “Ok if we’re going to have a happy ending we have to hint and suggest the possibility.”

GS: I do think the play ends with them understanding and respecting each other.

AS: It’s only at the end that they actually say, ‘I love you’ to each other. Having been through the trauma of losing a baby. Jack’s a smart dude!

GS: There seems to be some relationship and similarities between The Solid Life of Sugar Water and Lungs, which also played at 2015 Edinburgh Fringe. Can you explain this?

AS: We had read the script about three or four years ago. When we got the script we were really interested. Duncan Macmillan is a great writer. We were thinking of doing a double bill but then Paines Plough went ahead with the commission so we didn’t.

GS: I found the story quite similar.

AS: Yes that’s why we had the idea that the two plays could work together.

GS: Where are you taking the play next?

AS: We’re putting a tour together. We’re going to be at the National Theatre for three weeks, which is superb. It’s the first time Graeae has been there and we’re incredibly proud. We hope the momentum builds from there.

It’s one of those plays. I remember reading it for the first time, here as a company, and the kind of silence at the end of the reading, everyone taking deep breaths. We knew it was a huge impact type of play. Audience reactions to the play have been emotional and deep. One woman stopped watching half way through. She sat there with her head down and just wouldn’t watch. There was obviously something that really connected with her. She started watching again a bit later. She was with a group of her friends and I saw her at the end. She was just in complete floods of tears. I don’t really feel bad about too many things but I did then.

GS: Why did you feel bad?

AS: I felt for her because I didn’t know her story and didn’t know what it was that she was relating to. I went over and asked her and her friends if they were alright and did as much as I could, offered her a gin and tonic. Theatre is such a powerful thing. I think people sometimes forget the impact theatre can have.

GS: Why do you think theatre powerful as opposed to other mediums of storytelling?

AS: It’s so immediate. You’re there. You can connect, relate to the work. You are immersed in the play for the length of the piece. People love stories.

GS: You can watch a series on TV and experience stories. What is it specifically about theatre?

AS: The craft of theatre is important, the putting together of the story although you can also do that with film and TV. There is something unique about theatre in showing that passage of time. I think the immediacy of you as a member of the audience and your relationship with the performers is so unique to you in an environment where there are other people as well. That is very special. You can watch television or a film in a cinema however the screen allows you to be one step removed from it. You can’t really do that with theatre. It is more interactive. It’s more immediate.

The question in theatre is – Why now? What’s important about telling the story now? With TV and film you can go back to it again and those performances won’t change but with theatre they will. You can go one night and the next night there will be subtle differences, something may have shifted – become more superficial, something may have become deeper. There’s an unknown quality. There’s that thing also where if something ‘goes wrong’ the performers just have to pick up the baton and carry on and audiences love those moments when it doesn’t all go to plan. Film and TV are created where it all goes to plan so with theatre there’s a different type of freedom and an improvisational quality.

It’s about creating the story. The performers grab the audience very quickly, in a vital and stark way, asking them to empathise with them.

GS: Did the actors contribute to Jack Thorne’s script during rehearsal. Were changes made for any reason?

AS: Well the actors didn’t really suggest changes but we did shift the script around them. We didn’t have any idea who we wanted to work with so in the beginning in Jack’s script the character, Alice, wasn’t Deaf. When we cast Genevieve as the actor for that part, Jenny Sealey, the Artistic Director of Graeae, and I had a conversation and we gave notes to Jack saying there are elements relating to Genevieve that should have some representation in the script. But in contrast, the Post Office scene about Phil not being very strong wasn’t adapted for him because of Arthur’s arm or anything. That was the original script.

GS: I didn’t take that scene as being about his arm.

AS: Well some people do you see. They think that was where his impairment was being referenced because he had this big box that he couldn’t quite carry. That was always there. But Phil signing on the bridge wasn’t there before we cast the actors. Jack did a couple of rewrites based on Jenny’s and my notes.

The stuff that happens behind the scenes may change according to the actor you cast. At the beginning we had created a soundscape and every now and then there’d be a heartbeat noise as a cue for the actors to shift position. There was also a sound cue for the actors to know the audience was seated and we’d got clearance from front of house. It was a dog bark. Genevieve has hearing aids so she could feel the vibrations of the heartbeats, the shift and the change, because there was a speaker close to her. What became slightly tricky was her trying to listen to the dog barking because of the frequency and because there were so many people in the room all making noise. So we discussed a better way of cueing and her feeling comfortable within the cueing system.

Also because there is so much direct address, I said, ‘You have permission to look at Arthur whenever you want. We’re not asking you to play hearing.’ But Genevieve got around that by learning Arthur’s script as well and picked up on his rhythms, picked up on how he delivered the text. That was her process. She wanted the same access and freedom as him and decided on her own cues. That didn’t mean Arthur had to do it exactly the same way each time. So there was that kind of negotiation going on during rehearsal.

GS: How do you cast at Graeae? How did you cast the actors for this play?

AS: For this play I got a casting director in. We work with some amazing performers and some amazing actors. I just felt this time round it would be really healthy for the Company to audition new people and add to our expanding pool of performers.

GS: Do you specifically cast disabled actors?

AS: For this play I decided the casting breakdown. Irrespective of impairment this is what I’m looking for. Just by the nature of the play we needed people who would be good at delivering text. I don’t mean in the classical sense, I mean it’s such a wordy play. There is a demand that Jack’s writing presents itself. That doesn’t mean being quick or slow or whatever. That’s what Graeae does – we say this is the play and this is what we are looking for. Let’s see who we can get through the door.

GS: I believe Graeae practises some form of affirmative action in casting performers and actors who identify as Deaf and disabled. How does this work?

AS: Yeah in our plays we’ve got at least fifty percent actors who identify as Deaf or disabled. For the two-hander I thought we had to have two performers who identify. We couldn’t have one. It just didn’t feel right. It was such a small company. But when we did the Threepenny Opera there were something like twenty performers so ten were disabled and ten were non-disabled. As it transpired, we got to the end of rehearsals and three of the people who previously didn’t identify said, Oh yeah, I’m deaf in this ear or I’ve got this impairment. So the Deaf and disabled were staring to outnumber the non-disabled. It was interesting. One of the reasons is that if people declare their impairment jobs shut down.

GS: But not here at Graeae?

AS: Yeah exactly, absolutely not at Graeae. For Sugar Water we were conscious we wanted new blood and we found it. The other thing is that we will use some of the people who auditioned but didn’t get involved in Sugar Water for other projects. So we did pull in a new pool of actors. We are good at that.

GS: What’s the next project?

AS: At the moment we’ve got the Write to Play initiative, nurturing new writing talent. We’re also developing a new adaptation of The Hunchback of Notre Dame for production in 2017. There is also a verbatim play around the Incapacity Benefit, the Employment and Support Allowance, that’s under commission.

GS: Whose voices are represented? Those who apply for or receive the benefit, or those in the bureaucracy who assess people, hand out the benefit.

AS: A bit of both but mostly people on the receiving end of decisions. We’ve got a doctor. We’ve got a legal aid person, a variety. We’re doing a taster session at the moment in aerial training building up to a project with war veterans in 2018 – an outdoor piece I think. It’s linked into the recent 1914-1918 reflections on the First World War. There’s a big artistic element to it all. We are very fortunate to be working in this profession on great projects with wonderful people. It’s a really odd time because for a lot of Deaf and disabled people at the moment they don’t know whether they’re coming or going.

GS: Are you referring to government austerity measures?

AS: Yeah but the profile of Graeae is really accelerating. The Company is being recognised for the work that we’re doing. We’ve got Ensemble starting next week. It’s an eight-month, work-based, professional-development programme for six young artists. They’re nineteen to twenty-five year olds and we’re training them as theatre makers. Jodi Alissa Bickerton is our Creative Learning Director. She’s running that programme. It’s in response to barriers faced by many Deaf and disabled artists, as well as a lack of diversity within the current theatre climate.

GS: How do you choose the participants?

AS: We get the information out there. There’s an application process. We audition, then we interview them and go from there.It’s difficult at the moment because the austerity drive is seriously impacting disabled people on a number of levels, work, living, health.

GS: Do you think disabled artists have a responsibility to reflect this in their art?

AS: I think disabled artists have a responsibility to their art. It’s a tricky one. I think it’s about choice. Some artists are deciding to reflect in their work what’s happening socially, economically in our society. Other artists feel that the art itself, no matter what it’s about, will create the shift, create the change. It’s a difficult choice but I don’t begrudge anyone for whatever the choice is that they make. I really resist the idea of hierarchical disability. Disability includes such a wide range of circumstances. It can mean so many different things to people. The wider the experience and the subject matter of our art, the better it is for changing perspectives. Graeae does a lot of advocacy work but it can be really relentless. The cuts are creating a lot of insecurity.

GS: How important do you feel disability-led writing and directing is to changing public perceptions around disability?

AS: I think everything needs to be driven by the story that the writer or the director is trying to convey. Sometimes that feeling of importance can be restricting and uncreative. Audiences are smart, open and intelligent. If you take them on a journey then they’ll go with it. If everything about a play or a show becomes agenda driven then it can fail in changing those perceptions. The story is the thing.

Further Information:

Interview with Genevieve Barr & Arthur Hughes

Information on Graeae and the tour of The Solid Life of Sugar Water  or

The interview was conducted by Gaele Sobott on 28th September 2015 at Graeae Theatre Company in London

Creative Commons License
People Love Stories – an Interview with Amit Sharma by Gaele Sobott is licensed under a Creative Commons Attribution-NoDerivatives 4.0 International License.

THE COURAGE TO COME FORWARD – An Interview with Colin Hambrook

Black and White headshot of Colin Hambrook, a middle-aged, white man wearing glassesColin Hambrook was educated at Dartington College of Arts in South West England. Knitting Time, his exhibition of paintings, drawings and poetry about the experience of psychosis is on show at The Hub, East London until 15 November. The work was previously shown at Pallant House, Chichester and the Impact Arts Fair 2013. Colin’s first collection of poetry, 100 Houses was published by DaDaSouth in 2011, followed by Knitting Time (Waterloo Press ISBN 978-1-906742-65-2). He is the founding editor of Disability Arts Online

The interview was conducted by Gaele Sobott on 28th September 2015 at the Barbican Centre in London just before Colin attended the Creative Future Literary Awards at the Free Word Centre in Holborn.

Drawing by Colin Hambrook. Blue sky with clouds above green hills, a large ball of yellow wool sits just below the hills. Brown knitting needles are stuck in the ball of wool. A thick yellow line runs down the left side of the picture like a river, and green and yellow squiggly lines run parallel to this yellow band. To the right of the picture there is another thick band of yellow intersected by thin meandering green curves that creates what looks like an aerial view of plots of land or small farms. There a two faces, one squashed between the ball of wool and the yellow band on the left and one just below the ball of wool. In the bottom right-hand corner there is a woman wearing a green beret type hat and green coat. She is holding a sheep.

Call of the Ancient by Colin Hambrook

Gaele Sobott: In Australia the visual arts and now dance appear to be surging ahead in terms of developing platforms and exposure for disabled artists. Literature is quite a way behind. In the UK disabled writers and literature seem to be better placed. What are the Creative Future Literature Awards and how is Disability Arts Online involved?
Colin Hambrook: Creative Future is a Brighton-based organisation looking to promote careers of ‘marginalised’ writers and artists. Amongst those they support with their annual Literary Award are a certain number of disabled writers. Disability Arts Online is a partner. We have signed up to help them promote the program, get information out, reach people. In terms of literature in the UK, Survivors’ literature has led the way.
GS: Please explain what Survivors’ Literature is.
CH: The key organisation is called Survivors’ Poetry, founded in 1990 by four poets with direct experience of the mental health system in the UK. In a really short space of time it mushroomed into a huge phenomenon. It was a UK network of groups that all became affiliated, some of them became registered charities or not-for-profit companies in their own right and I would say between ’94 to ‘96 it exploded and was reported on in the media and really picked up on. It was important that the people who ran the organisation and wrote for Survivors’ poetry come from a mental health background. They had experienced mental distress, been through or had an intimate knowledge of the mental health system.
GS: What kind of work were they producing?
CH: In the 90s there was a kind of performance poetry format, going into day centres, resource centres, organisations working with people who had come through the mental health system, and producing workshops and giving people the opportunity to perform. So typically the first half of an event would be open mic encouraging people to get up and perform their writing and the second half would be more experienced performance poets. The organisation still exists with a core force of people in London but it has become less prominent elsewhere in the UK over the last ten years.
GS: Why do you think that has happened?
CH: Survivors’ Poetry’s strength was in its Community Arts ethos, but it has become harder to find funding for grassroots work. It’s hard to keep integrity, supporting individual artists creativity at a grassroots level whilst maintaining support for ‘professional’ artists. Survivors’ Poetry turned to producing a literary output, which has been fairly successful. As part of the Unlimited showcase at London’s Southbank Centre last year, Disability Arts Online and Survivors’ Poetry celebrated the achievement of the organisation with a reading by some of the Survivors’ founding poets in the Saison Poetry Library in the Royal Festival Hall. The library contains twenty-seven titles under the Survivors’ Press imprint.
GS: Has Disability Arts Online managed to keep its integrity?
CH: Disability Arts Online in the last ten or twelve years has kind of managed. It’s a bit like a dance, you want to keep your core constituency on board and to nurture that talent, but also you’ve got to watch out, keep an eye on the priorities linked to where financial support can be found to ensure funders’ demands are satisfied.
For instance we have a modest contract with Unlimited to report on all of the artists and all of the projects that come out of Unlimited. It’s a fantastic opportunity to spread the word about this important initiative. Much of Unlimited’s aims and values concur with those of Disability Arts Online, working to support the development of art by disabled artists within the UK cultural sector. Disability Art Online’s brief is to interview the artists, review the shows, comment on the work as it progresses, and where possible, to commission copy for other online magazines and press in order to facilitate the reach of Unlimited to new audiences. Unlimited had a fairly substantial presence at the Edinburgh Fringe Festival this year, with several pieces of work in the British Council Edinburgh Showcase. Unlimited is spearheaded by two organisations: Shape and ArtsAdmin and they’ve received support from the British Council in facilitating the artists taking their work outside the UK. In many ways it is a bright, shiny success story.
We have to work hard to ensure our integrity isn’t compromised, which means creating projects that support and create opportunities for our core constituency and looking to remain disabled-led as much as possible, whilst also working with the high-profile initiatives. Without the support of Unlimited many of the artists we work with would never have got the profile they’ve achieved. For example Jess Thom was unknown as a performer before her company Touretteshero received an Unlimited research and development commission for Backstage in Biscuitland. After a year or so of touring she has been commissioned by Channel 4 with a version of the show made for television, Broadcast in Biscuitland.
GS: So does your core constituency consist of disabled artists at grassroots level?
CH: Yes, disabled artists, writers, who are what the Arts Council term as emerging artists. They are people who create because they’ve got to create, not because they’re making a living out of being artists, necessarily.
GS: Is it possible some of these artists could find themselves forever classified as emerging because of the nature of the market and the value system used to categorise their art?
CH: Yes but that’s just the label that the Arts Council puts on it. People are creative because they need to be creative and creativity isn’t a commodity. We have this schism in our society that divides creativity up into commodity and art. It’s nonsense really.
GS: You mentioned that much of the art by disabled performers at this year’s Edinburgh Fringe Festival focused on the body. Can you please talk more about that?
CH: Yes that’s not necessarily a bad thing. Culturally it’s very different from disability arts of possibly ten, certainly fifteen years ago where the focus on impairment was frowned on.
GS: Was that in defence of the Social Model of Disability?
CH: Defending the Social Model but also it was much more then about community and about people raging against the machine, standing up against discrimination, being a collective force. What’s happened is that as the focus for disability arts has moved away and broken up into impairment-focused issues, which I think are important . . .
GS: Why do you think these issues are important?
CH: Because the key problem with what I would call the first wave of disability arts from the mid 80s to the end of the 90s was that it was very much inward-looking and there was a very powerful community of disabled people who were very clear in their aims and making strong art for and by disabled people. Indeed we got the DDA (Disability Discrimination Act 1995). Not the DDA we wanted but we got the DDA. What happened then was that the very clear, concise stand against discrimination got diluted and the Social Model as a source of inspiration and power for people to find a voice kind of hit a brick wall because impairment within the Social Model wasn’t really addressed in a very strong way. So all the slogans like, Nothing About us Without us, the focus on things being disability-led, kind of fell apart when certain disabled leaders, say for example a wheelchair user, didn’t understand all the politics around Deaf issues or blind issues. Having disabled leaders is important but having that broad understanding of access and the issues faced by people with different impairments is more important.
GS: Isn’t it possible to have disabled leaders with a more complex understanding of disability, Deaf experiences, impairment?
CH: Yes that is the ideal, yes.
GS: Why hasn’t that developed or has it?
CH: There’s a choice that happens in either developing the politics or developing the arts. They can go hand in hand and work with each other and they can also work against each other. The emphasis from the funders has been that if you want the money you have got to develop the aesthetic, you’ve got to develop the art. The politics have been sacrificed to a large extent. A big part of that politics is the importance and value of work being disability-led, because at the end of the day, it’s the experience of being disabled by society that motivates us.
GS: With this huge austerity drive and all these cuts do you think there is more of a need now to develop disability political leadership and action?
CH: Yes there is more of a need now than ever. Absolutely.
GS: How do you see that developing given what you have just said?
CH: It needs people with courage to come forward and start demonstrating on the streets again.
GS: Do you see the march to Downing Street on Saturday protesting the changes being made to Access to Work as an example of this?
CH: I’m really angry that the government are cutting Access to Work. In this case the government said they will cap what any one BSL interpreter can earn at $40 000 a year. But who the hell in the arts is earning forty grand a year? Very few I would say. So the demonstrators were protesting the cuts in Access to Work with this cap on how much an individual can earn. There are thousands of disabled people dying because of cuts. The government is playing a game of divide and rule. On the one hand they are saying they want to get all disabled people into work, but on the other they’re denying means to make working an option. There needs to be a clearer focus in standing up to these issues.
GS: So are you saying that political leadership and analysis are lacking?
CH: Yes
GS: When you say there is a need for people with courage to come forward, the courage to do what?
CH: What the hell do we do in this political climate? I got very involved in supporting the 10 000 Cuts and Counting protest. At the end of 2013 we were working with Michael Meacher MP and the Dean of St Paul’s Cathedral. We met Michael Meacher in his office in Downing Street. He had a mass of files of printouts, of emails and letters of people who had written to him of their plight, their family’s plight, what was happening as a result of austerity, what was happening as a result of cuts in disability benefits. The main focus was that over ten thousand people had died within six weeks of being declared fit for work because their benefits had been cut and they’d been left with no money. Those individuals didn’t necessarily pass away because of the cut in their benefits, but equally, many did. Can you imagine the indignity of being on your deathbed and getting an official letter from the Department of Work and Pensions telling you that you are fit for work? And this has happened to many thousands of individuals and their families. There has been a very dangerous shift in attitude that as an individual living in this society you have to prove that you are financially contributing to it for your existence to be valid. We’ve gone back to the Victorian age within a few short years with the ruling class and their bastard politics. They’ve got every evil connivance of screwing the tax payer and they’ve got the media sewn up so they can infest everyone’s brains that it’s disabled people who have brought austerity upon us, that have brought down the economy. It’s evil!
GS: So do you think it is the responsibility of disabled artists to identify as part of the community and bring the politics into their art in some way?
CH: I personally think it is but then who am I to demand that of an individual? I encourage individuals to get involved in Disability Arts Online who have that ethos. I would say though that generally this time around people are finding it much harder to stand up for their rights.
GS: Why do you think that is?
CH: Well I would include myself in this criticism and say after the DDA was established, the disability movement never really went out of its way to include younger people. So we’ve still got the same old codgers now trying to make a stand like they did twenty or thirty years ago. People are older and frailer.
GS: The older people may no longer have the physical strength but they have knowledge. Do you think younger people are separated from that history, that knowledge of what has gone before them? Are they expected to reinvent the wheel?
CH: Yes and the tendency of Neoliberalism is to encourage people into their own little camps, individualism, losing sight of the larger collective.
GS: Do we need to theorise how to change that and if so how?
CH: It has to happen. I think going back to what we were saying earlier there is a value and an importance in the work that has become the key focus for disability arts – the relaying of stories about the body, stories of people’s experiences of individual impairment, of discrimination.
GS: How does art play a role in changing public perceptions?
CH: Art has a key role to play. You might not call an ITV soap opera, art, but in terms of popular culture, it’s much more wide-reaching than most art.  And so for example, Liam Bairstow who trained with Mind the Gap has recently got a lead role in ITV’s Coronation Street. I think that a young actor with learning difficulties being seen on TV is definitely going to change attitudes, make a lot of people think and those changes are really important.
GS: It seems you are saying that change needs to take place on many levels.
CH: That’s where disability arts is at now I think, certainly within the performing arts, and within the visual arts. In the visual arts there is possibly a bit more politics.
GS: Going back to individual courage – someone may have the courage needed to come forward but if others don’t join with that person it could be very demoralising. What is your experience in this regard?
CH: Well yes, for me, we went to all that effort with 10 000 Cuts and Counting and none of the media turned up and it was all forgotten very quickly. No one took any notice. Nobody seems to care that many thousands of disabled people died because of cuts. Nobody thinks that could be me, or that could be a member of my family.
GS: You said the media didn’t pick up on the story. Disability Arts Online plays an important role in providing an alternative media source.
CH: Yes we do provide an alternative media and we keep plugging away.
GS: You started Disability Arts Online in 2002, and in 2004 you set it up as a not-for-profit company limited by guarantee. So it’s been running for over eleven years. How do you fund the organisation?
CH: We’re constantly working on funding applications for projects. We have a broad vision for how we operate in terms of raising debate about disability arts practice and supporting the work of individuals and organisations across art forms.
We’ve recently received funding from Arts Council’s Grants for the Arts scheme for Viewfinder over the next eighteen months. Viewfinder will see us working in partnership with Wikimedia UK, Sick! Festival, SPILL Festival, Carousel, the New Wolsey Theatre and Goldsmiths Disability Research Centre. It’s very exciting. Wikimedia UK are keen for us to populate Wikipedia with pages dedicated to disabled artists and a history of the movement. The Disability Research Centre at Goldsmiths University is supporting us in running a series of workshops.
We’re producing a video platform and commissioning disabled artists/filmmakers to curate a selection of disability work from the archives of Sick! Festival in Brighton, SPILL Festival in Ipswich/London and Carousel’s Oska Bright Festival. We will produce videos commenting on the importance of the selection in advancing the practice of disabled artists. So, for example Matthew Hellett, who is a learning disabled filmmaker on the Oska Bright committee will be making a film about what makes for good representation; how the committee judge the best films for Oska Bright. We’ve also got another year of core funding from the Esmée Fairbairn Foundation, which is renowned for funding organisations with a community remit.
GS: Have you come up with ideas for sustaining Disability Arts Online on a more long-term, financial basis? Have you tried financing the group by any means other than government funding or philanthropy?
CH: We’ve tried a few experiments. We recently worked with Stopgap Dance Company. They produced the Independent Fringe platform in Edinburgh. Disability Arts Online produced a crowd-funding platform for one of the younger artists, Rowan James. That was successful. We raised £1500 towards getting him to the Edinburgh Fringe Festival. We want to do more of that.
GS: You have described how outside funding can determine the path you take. So if you want to be independent of those demands and priorities in terms of changing the political situation how do you achieve financial independence and sustainability?
CH: Well yes sometimes you feel that the odds are stacked against you. It is a constant struggle. We need time and energy and imagination to come up with strategies. We have a shared knowledge and experience that can be incredibly useful to many industries, so we are also working to find ways to be more sustainable through consultancy and media partnerships.
GS: You have shared your childhood and some challenging personal experiences through your poetry in a way that must be quite confronting but hugely important in terms of supporting people within the Survivors Movement and people who may feel isolated. Would you like to comment on how art can provide a form of community solidarity and empowerment, especially in reference to your latest collection of poetry, Knitting Time?

A drawing of a small boat knitted from yellow wool, sailing on a blue sea with stylised waves against a bright blue sky

Knitting Time by Colin Hambrook

CH: I’d like to think that Knitting Time had value in giving a voice to issues around mental distress. Mostly, psychiatry condemns individuals to the judgement of a medical imperative, which locates mental health problems in the head divorced from the individual’s life experience and circumstances or indeed from any emotional impact located in the body. It treats the individual as having a separate, disconnected body and mind and introduces powerful and potentially harmful drugs to suppress experience deemed as mental health problems. Often, those experiences can be exhilarating and creative even if they can make it harder to function in the ‘real world’. Often mental health ‘issues’ are a matter of an individual having the confidence to be comfortable with who they are.
So in sharing some of my own journey I would hope to break some of the isolation people feel. There is empowerment in hearing others’ stories, others’ expression. There are poets like John Clare and William Blake whose names come up frequently in terms of writers whose core work continues to inspire empowerment within a survivors’ community. There was a poem by Ellen Link that I go back to again and again that inspires my sense of the value of connection; and connection with nature as a healing force in contradistinction to this narrow framework we are meant to fit in with when it comes to being seen as valid, mentally healthy members of society: “In the woods they blast/ your courage to tell you/ you are not a tree, that the wild wind /and the grey skies are not your cousins/ though their atoms be like yours. . .”

For further reading:

Colin Hambrook’s Art and Poetry Blog

Celebrating the Survivors’ Movement

Jess Thom’s Tourettes Hero

10 000 Cuts and Counting 1

10 000 Cuts and Counting 2

10 000 Cuts and Counting 3

Creative Commons License
The Courage to Come Forward – an Interview with Colin Hambrook by Gaele Sobott is licensed under a Creative Commons Attribution-NoDerivatives 4.0 International License.